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Where can I find additional resources on human rights in patient care?
Resources
To further your understanding on the topic of human rights in patient care, a list of commonly used resources has been compiled and organized into the following categories:
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Declarations and resolutions: UN
- Principles of Medical Ethics Relevant to the Role of Health Personnel, Particularly Physicians, in the Protection of Prisoners and Detainees against Torture and Other Cruel, Inhuman or Degrading Treatment or Punishment (1982).
Source: www.unhchr.ch/html/menu3/b/h_comp40.htm
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Declarations and resolutions: non-UN
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Books
- Angell, Marcia. The Truth about Drug Companies: How They Deceive Us and What to Do about It. New York: Random House, 2005.
- British Medical Association. The Medical Profession and Human Rights. Zed Books, 2001.
- Den Exeter, Andre. Health Care Law-Making in Central and Eastern Europe: Review of a Legal-Theoretical Model, Intersentia, 2002.
- Gevers, J.K.M., Hondius, E.H., and Hubben, J.H, eds. Health Law, Human Rights and the Biomedical Convention: Essays in Honour of Henriette Roscam Abbing, 2005.
- Lavik, JL. Pain and Survival: Human Rights Violations and Mental Health. Scandinavian University Press, 1994.
- Rosenmoller, McKee and Baeten, eds. Patient Mobility in the European Union: Learning from Experience. European Observatory on Health Systems and Policies, 2006.
- World Health Organization. Enforcement of Public Health Legislation. WHO Western Pacific Region, 2006.
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Reports, key articles, and other documents
- Amnesty International Ethical Code and Declarations Relevant to Health Professionals.
Source: web.amnesty.org/pages/health-ethicsindex-eng
- Aydin, E., Rights of Patients in Developing Countries: the Case of Turkey, Journal of Medical Ethics 2004; 30:555-557.
- Crofts, N., Louie, R., Loff, B. The next plague: stigmatization and discrimination related to hepatitis C virus infection in Australia. Health and Human Rights, 2(2), 86-97 (1997).
- “Cross-border Health Care in Europe”, Policy Brief, European Observatory on Health Systems and Policies (2005).
- Council of the European Union, General Secretariat: Conclusions of the Council on patient mobility and health care developments in the European Union, Brussels, 19 April 2004.
- EPHA Briefing on Human Rights, European Health Alliance (2005).
- Fallberg, Lars, “Patients’ Rights in Europe: Where do we stand and where do we go,” European Journal of Health Law 7: 1-3 (2000).
- Fridli, Judit, “New Challenges in the Domain of Health Care Decisions,” Policy Paper, International Policy Fellowship Program, Open Society Institute, Budapest (2006).
- Gilson, Lucy. “Trust and the Development of Health Care as a Social Institution,” Social Science & Medicine 56 1453-1468 (2003).
- Glinos, Irene A. and Baeten, A Literature Review of Cross-Border Patient Mobility in the European Union, Europe for Patients Project (September 2006).
- Human Rights in Action---A Framework for Local Action (designed by Department of Health, British Institute of Human Rights, and 5 NHS Trusts), Equality and Human Rights Group (2007).
- Hungarian Civil Liberties Union, Policy Paper on the Rights of Patients.
- Leenen, Henk, Givers, Sjef and Pinet, Genevieve (eds), “Promotion of the Rights of Patients in Europe, a Comparative Study,” Amsterdam: Academic Publishers (1993).
- Mackintosh, Maureen. “Do Health Care Systems Contribute to Inequalities?” Poverty, Inequality and Health 175-193.
- Milevska-Kosova, Neda, “Patients Rights as a Policy Issue in South Eastern Europe, Policy Paper, International Policy Fellowship Program, Open Society Institute, Budapest (2006)
- National Activities on Patients’ Rights and Quality of Health Care (Asia and Pacific, Africa, Latin America, Countries in Transition, Developed Economies), Consumers International (2005).
- Patients’ Rights in Europe: A Citizens’ Report, Summary of Meeting Organized by Active Citizenship Network at the European Parliament, Brussels, February 28 to March1, 2005, Health and Social Campaigners’ Network, Wales, Commissioned by Oxford Vision 2020 (March 2005).
- “Patients’ Rights in Europe Today,” Speech, European Ombudsman (2005).
- PHR and University of Cape Town. Dual Loyalty And Human Rights in Health professional Practice: Proposed Guidelines and Institutional Mechanisms. Online at physiciansforhumanrights.org/library/report-dualloyalty-2006.htmlPolicy Paper on the Rights of Patients, Hungarian Civil Liberties Union.
- Rich, Robert F. and Merrick, Kelly R., Cross Border Health Care in the European Union: Challenges and Opportunities, University of Illionis Working Paper, October 2006.
- Scott, Penelope, Undocumented Migrants in Germany and Britain: the Human “Rights” and “Wrongs” Regarding Access to Health Care, Electronic Journal of Sociology (2004).
- Social Challenge to Health: Equity and Patients’ Rights in the Context of Health Reforms, Council of Europe 5th Conference of European Health Ministers (1996).
- Stefanoska, Cavdar, Isajlovska, and Stefanovska, “Rights of the Patients in Macedonia According to the European Standards,” Report, Skopje: MIA---Association of Health Education and Promotion of Health (2005).
- Survey of the UK Public: Patients’ Rights (Backgrounder to Main Report: Patients’ Rights in Europe and the UK), The Patients’ Association (2005).
- United States Department of Health and Human Services, Centers for Medicare and Medicaid Services: 42 CFR Part 482, Medicare and Medicaid Programs; Hospital Conditions of Participation; Patients Rights; Final Rule, Federal Register, Friday, December 8, 2006
- Written Contribution to Communication from the Commission-Consultation Regarding Community Action on Health Services, ILGA Europe (2007).
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Periodicals
- British Medical Journal
- Conflict and Health
- European Journal of Health Law
- Journal of Law, Medicine and Ethics
- Journal of Medical Ethics
- The Lancet
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Websites
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Blogs
- The Health Consumer Blog @ Health Consumer Powerhouse
- Global Directory of Patients’ Organizations @ International Alliance of Patients’ Organizations
www.patientsorganizations.org
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